World Orphan Drug Conference, USA
- Washington DC, USA -
- 20 April, 2016.
- Adam Barak presenting at the World Orphan Drugs Conference, Washington Educational Seminar (full day) Challenges and Solutions for Funding Treatment of Rare Diseases: Payers’ Perspectives.
- PPi’s Adam Barak and Randy Perry chaired a payer forum where invited payers from the USA (CMS, Aetna and Medicaid) and from France, the UK, Italy Australia and Bulgaria discussed practical guidance for the listing and funding of high-priced drugs used to treat rare conditions
- PPi also produced a White Paper for this conference (copy available) setting out approaches and examples to obtaining funding for orphan drugs